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A Conceptual Thematic Framework of Psychological Adjustment in Caregivers of Children with Craniofacial Microsomia. Cleft Palate Craniofac J. 2024 Apr 08; 10556656241245284.
Stock NM, Costa B, Parnell J, Johns AL, Crerand CE, Billaud Feragen K, Stueckle LP, Mills A, Magee L, Hotton M, Tumblin M, Schefer A, Drake AF, Heike CL. PMID: 38584503.
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Development of a Group Curriculum for Children With Congenital Upper Limb Difference (CULD) and Their Caregivers. Orthop Nurs. 2024 Mar-Apr 01; 43(2):93-102.
Nelson D, Hauschild M, Johns AL, Lightdale-Miric NR. PMID: 38546683.
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Humans
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Early Experiences of Parents of Children With Craniofacial Microsomia. J Obstet Gynecol Neonatal Nurs. 2024 Feb 03.
Johns AL, McWilliams D, Costa B, Heike CL, Feragen KB, Hotton M, Crerand CE, Drake AF, Schefer A, Tumblin M, Stock NM. PMID: 38320743.
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Dental Protraction Versus Surgery for Cleft Lip and Palate: A Budget Impact Analysis. J Craniofac Surg. 2024 Jan-Feb 01; 35(1):129-132.
Gong CL, Choi DG, Dominguez A, Deng R, Lo R, Pappa S, Johns AL, Urata MM, Hammoudeh JA, Yen SL. PMID: 38011624.
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Humans
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Thematic Analysis of Parental Experiences of Patients' Orthognathic Surgery. J Craniofac Surg. 2024 Jan-Feb 01; 35(1):85-90.
Johns A, Zukin J, Odono L, Cardenas AK, Baird J, Clarke N. PMID: 37889045.
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Humans
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Establishing an International Interdisciplinary Research Network in Craniofacial Microsomia: The CARE Program. Cleft Palate Craniofac J. 2023 May 29; 10556656231176904.
Stock NM, Crerand CE, Johns AL, McKinney CM, Koudstaal MJ, Drake AF, Heike CL. PMID: 37248561.
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1 Fields:
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Early Ophthalmology Findings in Nonsyndromic Craniosynostosis. J Craniofac Surg. 2023 Jun 01; 34(4):1259-1261.
Tien C, Johns AL, Choi DG, de Castro-Abeger A, Buswell N, McComb JG, Durham SR, Urata MM. PMID: 37101323.
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Humans
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Psychosocial and Health-Related Experiences of Individuals With Microtia and Craniofacial Microsomia and Their Families: Narrative Review Over 2 Decades. Cleft Palate Craniofac J. 2023 09; 60(9):1090-1112.
Johns AL, Stock NM, Costa B, Billaud Feragen K, Crerand CE. PMID: 35382590; PMCID: PMC10803131.
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1 Fields:
Translation:
Humans
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Parental Reports of Intervention Services and Prevalence of Teasing in a Multinational Craniofacial Microsomia Pediatric Study. J Craniofac Surg. 2021 Nov-Dec 01; 32(8):2687-2691.
Johns AL, Luquetti DV, Heike CL, Drake AF, Roque MMD, Hurtado-Villa P, Pachajoa H, Porras-Hurtado GL, Zarante I, Magee L. PMID: 34727472; PMCID: PMC9248443.
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PubMed Mentions:
1 Fields:
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Humans
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Haploinsufficiency of SF3B2 causes craniofacial microsomia. Nat Commun. 2021 08 03; 12(1):4680.
Timberlake AT, Griffin C, Heike CL, Hing AV, Cunningham ML, Chitayat D, Davis MR, Doust SJ, Drake AF, Duenas-Roque MM, Goldblatt J, Gustafson JA, Hurtado-Villa P, Johns A, Karp N, Laing NG, Magee L, University of Washington Center for Mendelian Genomics, Mullegama SV, Pachajoa H, Porras-Hurtado GL, Schnur RE, Slee J, Singer SL, Staffenberg DA, Timms AE, Wise CA, Zarante I, Saint-Jeannet JP, Luquetti DV. PMID: 34344887; PMCID: PMC8333351.
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20 Fields:
Translation:
HumansAnimalsCells
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Exploratory Qualitative Analysis of Early Literacy Engagement in Latinx Parents of a Child With a Cleft. J Craniofac Surg. 2021 Jul-Aug 01; 32(5):1817-1821.
Johns A, Wallace E, Thach J, Ola C, Gallagher E, Gutierrez Y, Collett B. PMID: 34319683.
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Humans
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Association of language proficiency, sociodemographics, and neurocognitive functioning in dual-language Latino survivors of childhood acute lymphoblastic leukemia and lymphoma. Pediatr Blood Cancer. 2021 09; 68(9):e29118.
Bava L, Freyer DR, Radbill LM, Johns AL. PMID: 34019328.
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Humans
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Cognitive, Motor, and Language Development of Preschool Children With Craniofacial Microsomia. Cleft Palate Craniofac J. 2021 09; 58(9):1169-1177.
Collett BR, Wallace ER, Kapp-Simon KA, Johns AL, Drake AF, Heike CL, Kinter S, Luquetti DV, Magee L, Norton S, Sie K, Speltz ML. PMID: 33322943; PMCID: PMC9629398.
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1 Fields:
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Humans
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Velopharyngeal Insufficiency Impact and Nasopharngoscopy Discomfort and Cooperation: Patient, Parent, and Provider Perspectives. J Craniofac Surg. 2020 Sep; 31(6):1713-1716.
Johns A, Tanner A, Gingrich M, Urata M. PMID: 32310884.
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Humans
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Behavioral Adjustment of Preschool Children With and Without Craniofacial Microsomia. Cleft Palate Craniofac J. 2021 01; 58(1):42-53.
Johns AL, Wallace ER, Collett BR, Kapp-Simon KA, Drake AF, Heike CL, Kinter SL, Luquetti DV, Magee L, Norton S, Sie K, Speltz ML. PMID: 32783465; PMCID: PMC9528811.
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3 Fields:
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Humans
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Microtia and craniofacial microsomia: Content analysis of facebook groups. Int J Pediatr Otorhinolaryngol. 2020 Nov; 138:110301.
Umbaugh HM, Crerand CE, Stock NM, Luquetti DV, Heike CL, Drake AF, Billaud Feragen KJ, Johns AL. PMID: 32838996.
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2 Fields:
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Humans
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Facilitating Positive Psychosocial Outcomes in Craniofacial Team Care: Strategies for Medical Providers. Cleft Palate Craniofac J. 2020 03; 57(3):333-343.
Stock NM, Marik P, Magee L, Aspinall CL, Garcia L, Crerand C, Johns A. PMID: 31446785.
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3 Fields:
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Humans
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Evaluation of prenatal diabetes mellitus and other risk factors for craniofacial microsomia. Birth Defects Res. 2019 07 01; 111(11):649-658.
Siebold B, Heike CL, Leroux BG, Speltz ML, Drake AF, Johns AL, Kapp-Simon KA, Magee L, Luquetti DV. PMID: 30927385; PMCID: PMC6602800.
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1 Fields:
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Humans
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Methods and Challenges in a Cohort Study of Infants and Toddlers With Craniofacial Microsomia: The Clock Study. Cleft Palate Craniofac J. 2019 08; 56(7):877-889.
Luquetti DV, Speltz ML, Wallace ER, Siebold B, Collett BR, Drake AF, Johns AL, Kapp-Simon KA, Kinter SL, Leroux BG, Magee L, Norton S, Sie K, Heike CL. PMID: 30621445; PMCID: PMC6996714.
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7 Fields:
Translation:
Humans
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Risk Factors for Preoperative Developmental Delay in Patients with Nonsyndromic Sagittal Craniosynostosis. Plast Reconstr Surg. 2019 01; 143(1):133e-139e.
Imahiyerobo TA, Johns AL, Christian EA, Sanchez-Lara PA, Krieger MD, McComb JG, Urata MM. PMID: 30589799.
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3 Fields:
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Humans
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In Their Own Words: Caregiver and Patient Perspectives on Stressors, Resources, and Recommendations in Craniofacial Microsomia Care. J Craniofac Surg. 2018 Nov; 29(8):2198-2205.
Johns AL, Luquetti DV, Brajcich MR, Heike CL, Stock NM. PMID: 30334912; PMCID: PMC6224304.
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6 Fields:
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Humans
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Postpartum Depression in Mothers of Infants With Cleft Lip and/or Palate. J Craniofac Surg. 2018 Jun; 29(4):e354-e358.
Johns AL, Hershfield JA, Seifu NM, Haynes KA. PMID: 29481498.
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2 Fields:
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Humans
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Psychosocial Functioning of Children in a Craniofacial Support Group. Cleft Palate Craniofac J. 2019 03; 56(3):340-348.
Johns AL, Bava L. PMID: 29746154.
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3 Fields:
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Humans
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Neurodevelopment of Infants with and without Craniofacial Microsomia. J Pediatr. 2018 07; 198:226-233.e3.
Speltz ML, Kapp-Simon KA, Johns AL, Wallace ER, Collett BR, Magee L, Leroux BG, Luquetti DV, Heike CL. PMID: 29685618; PMCID: PMC6019149.
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8 Fields:
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Humans
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Healthcare and psychosocial experiences of individuals with craniofacial microsomia: Patient and caregivers perspectives. Int J Pediatr Otorhinolaryngol. 2018 Apr; 107:164-175.
Luquetti DV, Brajcich MR, Stock NM, Heike CL, Johns AL. PMID: 29501301; PMCID: PMC5839339.
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7 Fields:
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Humans
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Cognitive outcomes among Latino survivors of childhood acute lymphoblastic leukemia and lymphoma: A cross-sectional cohort study using culturally competent, performance-based assessment. Pediatr Blood Cancer. 2018 Feb; 65(2).
Bava L, Johns A, Kayser K, Freyer DR. PMID: 28988412; PMCID: PMC7521146.
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3 Fields:
Translation:
HumansCTClinical Trials
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Early Familial Experiences With Microtia: Psychosocial Implications for Pediatric Providers. Clin Pediatr (Phila). 2018 06; 57(7):775-782.
Johns AL, Im DD, Lewin SL. PMID: 28959893.
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5 Fields:
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Humans
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Development of a Culturally Competent Service to Improve Academic Functioning for Latino Survivors of Acute Lymphoblastic Leukemia: Methodological Considerations. J Pediatr Oncol Nurs. 2017 May/Jun; 34(3):222-229.
Bava L, Johns A, Freyer DR, Ruccione K. PMID: 27889691; PMCID: PMC7514879.
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3 Fields:
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Humans
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Teasing in younger and older children with microtia before and after ear reconstruction. J Plast Surg Hand Surg. 2017 Jun; 51(3):205-209.
Johns AL, Lewin SL, Im DD. PMID: 27609237.
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10 Fields:
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Humans
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Familial Recurrence of 3MC Syndrome in Consanguineous Families: A Clinical and Molecular Diagnostic Approach With Review of the Literature. Cleft Palate Craniofac J. 2017 11; 54(6):739-748.
Gardner OK, Haynes K, Schweitzer D, Johns A, Magee WP, Urata MM, Sanchez-Lara PA. PMID: 27356087.
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11 Fields:
Translation:
Humans
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Timing pediatric ear reconstruction: The case for a range of options. J Plast Reconstr Aesthet Surg. 2016 Apr; 69(4):567-8.
Johns AL. PMID: 26803566.
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Humans
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Pre and post-operative psychological functioning in younger and older children with microtia. J Plast Reconstr Aesthet Surg. 2015 Apr; 68(4):492-7.
Johns AL, Lucash RE, Im DD, Lewin SL. PMID: 25573811.
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18 Fields:
Translation:
Humans
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Qualitative analysis of the role of culture in coping themes of Latina and European American mothers of children with cancer. J Pediatr Oncol Nurs. 2009 May-Jun; 26(3):167-75.
Johns AL, Oland AA, Katz ER, Sahler OJ, Askins MA, Butler RW, Dolgin MJ. PMID: 19398713; PMCID: PMC2906121.
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9 Fields:
Translation:
Humans
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Alcohol-related problems, anger, and marital satisfaction in monoethnic Latino, biethnic Latino, and European American newlywed couples. Journal of Social and Personal Relationships. 2007; 24:255-275.
Johns, A, Newcomb, M, Johnson, M, & Bradbury, T .